There are many medical expenses that come with an SMA diagnosis. These expenses include co-pays for numerous doctor and therapy visits, co-pays for medical equipment and out of pocket expenses for medical equipment not covered by insurance. Also is becoming increasing clear that we are going to have to purchase a more accessible home because of SMA. Tanner and Skyler have never been able to walk and are completely dependent on using a wheelchair. At some point both boys will have to transition to power wheelchairs because their muscles will continue to get weaker. Our current split-entry home is not wheelchair friendly because you can not get in or out it without navigating many stairs. They can not get to a sink in his wheelchair to wash their hands and even have a hard time getting into the narrow bathrooms. Two kids in wheelchairs means we need more one-level open space so they can play and move independently. And since they require physical therapy daily to slow muscle wasting, they also need space for their therapy equipment such as parallel bars, walkers, and standers. Tanner and Skyler also need a wheelchair friendly place to play outside. They desire to play outside with their brothers and other children but are not strong enough to use their manual wheelchairs on the grass. We need a home where all my boys can feel like they can run around and play. Tanner and Skyler just need opportunities to be like regular children- playing, growing and learning to be independent. We want to give them these opportunities.
Money donated to Tanner and Skyler's medical needs will be used for medical equipment and wheelchairs they will need as they grow. Funds will also be used to provide a home for Tanner and Skyler that will meet their long term needs as they live and grow with SMA. We are working and saving as a family but there are many who have expressed a desire to be a part of helping these two sweet boys and our family through this SMA journey and that is why we decided to provide the opportunity for donations on this page. Thank you all for your love and support.